"Painful as this time is, you will one day see the reason for it. Not cruel testing but tender preparation for the wonderful work you are to do."
Here is a quick rundown of what has happened for the past 72 hours with our little man.
Kaleb had a fever of 103.5 and was very lethargic. We treated him with Motrin and Tylenol and lots of rest.
He took a nap around noon and about 4-5 hours later I decided it was time for him to wake up. I took his temp and it was 104.2. While changing his diaper I noticed that both of his legs, below his knees were swollen. We called his pediatrician on call number and the nurse told us to go to the hospital. I took Kaleb and the hubby stayed with our toddler. We sat in the waiting room for a few hours and finally went back. X-rays were taken and lab work showed there may be an infection in his soft tissues and bones. Kaleb was admitted. Kaleb's white blood cells were 23, normal should be around 10 or lower.
We didn't get our hospital room until 5 am. Kaleb was admitted to the Ortho Neuro Unit at Arnold Palmer Hospital. Kaleb had an MRI which showed there was no infection in the bone but possibly some in his soft tissues. Monday night his orthopaedic doctor came in and said there is absolutely nothing wrong in his foot and feels confident that is not the location of the infection. More blood was taken for more in depth studies on his blood.
The results from last night's blood work came back showing that Kaleb is severely anemic and there is bleeding somewhere in his body. At the same time, his red blood cells should be higher than normal to compensate for his loss of blood. However, his bone marrow is not adequately producing red blood cells to help the situation. On top of that blood was found in his stools which raises even more questions. With all of that his pediatrician on the unit decided it would be best for Kaleb to have a blood transfussion. He made sure hematology came in to speak to us along with infectious disease doctors. They both asked a bazillion questions about our families and health issues within the family. The main hematologist who has the final say in whether Kaleb gets a transfusion at this time never came to see us before she left for the night. What the hell lady? Before the end of the day Kaleb also had a renal ultrasound (kidneys). Kaleb finally slept in his hospital crib [he hates that thing]. He slept for a good 6 hours before some crazy night nurse thought she should wake him up for his antibiotics. He did go to sleep for a little bit more after she left as long as I was holding him in my bed so that was nice.
The pediatrician on the unit woke me up out of a dead sleep, I was probably snoring with my mouth wide open and maybe some drool coming out. I apologized a million times to him. He said Kaleb's renal ultrasound looked good but did show that he still has hydronephrosis in his left kidney and it's a little bit worse than when he was 3 months old and he had a renal ultrasound then. He expressed being upset that the head hematologist did not come see Kaleb last night because he has labs he needs to draw before the blood transfusion and everyone is basically waiting on what hematology does. He said that GI told them after their consult yesterday that if tests continue to come back negative they will go ahead with the colonoscopy.
And here we are...Wednesday morning at 8:29 am. We have no discharge date in site and still so many answers to get for little man. Kaleb came up to the hospital last night and was excited to finally see his brother, he kept asking for where baby was. Nolan is so sweet. Speaking of my Nolan, we went to Best Buy yesterday with our dear friend Tiffany to get her a laptop. During her search Nolan heard music playing from the car area and ran over there. I took the following video there. Listen really closely at the end of the guys who are laughing at Nolan. He's such a little entertainer!
Thank God for my big man Nolan to help keep me grounded. Who doesn't like dancing in a store? I danced a little bit with him yesterday and it was great. We should all take some time out of our day today to dance silly with our kids. What a great feeling!!