My title is probably mostly misleading. Normally you have a drum role when you are awaiting something exciting, perhaps finding out the sex of your unborn baby or getting ready to find out who won in a really rewarding game. Well my drum roll is a little less enthusiastic, probably why I didn't use exclamation points [also probably why I'm letting Nolan pull down everything from my photo album shelf and throw my makeup all over the place]. I'm just blah today.
This morning I got a call from Dr. Weatherly. I had to pause for a few moments because he didn't identify which specialist he was, and honestly I can't remember all of them at this point. Once he started talking about K's sleep study I realized he was our Pulmonologist. He said that he got our sleep study results back today. One of the biggest things I've learned through this journey is that doctors do not call you unless there are concerns. He said that Kaleb's oxygen levels went pretty low at night and he does in fact have sleep apnea. He told me he wants us to go see an ENT to see if there is any tissue blockages and then if not Kaleb will need to go on Oxygen.
I know sleep apnea is not rare and very common, mostly among older men. My son is only 3 months old. I also realize that sleep apnea is very common among Trisomy babies, I sort of already expected this. But at the same time it's hard to hear something is "wrong" with your baby. Especially when there are a lot of "wrong" things with your baby. I know parents that cry when their baby have their first ear infection [I'm definitely not knocking those parents, trust me...I was a wreck through most of Nolan's ear infections, I'm pretty sure they affected me more than they affected him]. When an ear infection is the worst that your kid has had, it's pretty hard to get through. Just imagine if you continuously have new illnesses that come up on a monthly basis, and each one is just like the first ear infection was. Every new diagnosis is scary...we don't have information up front and we worry a lot. What new doctors will we see? Is there surgery involved? Will he need to be in the hospital? Is this going to cause him pain? Will he outgrow this diagnosis or will he live with it forever? How will this affect is life? How will this affect our lives? How much will insurance pay for? Those are the normal questions for us.
Anyways, we are going to Nolan's wonderful ENT, Dr. Kosko next week to see what's going on with K's little nose [the cutest little nose, with a very slight birth mark on it]. I actually look forward to that appointment...I look forward to any appointment that is supposedly going to give us answers and a treatment plan.
On another note, Nolan has been home the past two days with some [nasty] pink eye. Ew gross. He is finally going back to school tomorrow. We were given this scream that you have to line on the bottom of his eye where his lower eyelashes are. The doctor swore those are easier. I disagree. A lot. It's very goopy and Nolan hates them. The stuff gets stuck in his eyes and probably irritates them even more. It's very hard to get a straight line on a flailing toddler. It's almost like putting eye liner on while in a moving car, it just doesn't come out very well.