...POMPE'S disease! We found out yesterday that Kaleb doesn't have Pompe's disease. THANK GOD! I'm very rarely religious BUT I felt this was the right situation for some sort of "religion". I knew it was nearly impossible for him to have Pompe's (which is VERY serious for infants) however, we are very used to rare disorders, diseases, and situations. It feels good to win a battle over something so rare for once.

I still remember when I was 21 weeks pregnant and our genetic counselor told us we "won the lottery that we never wanted to win". Since then we have started playing the lottery ;) 

0 thoughts:

Post a Comment