Thank you for being an inspiration to all parents...and a shining example of strength and endurance. I know it's hard, and it's a fight everyday to stay positive, but I think you're doing a great job! My prayers are with you and your family and especially for your beautiful son! ~MRSmrg
I was thinking about you when I logged on tonight and worried/wondering how things had progressed. Please keep in contact here if you can, let us know how you are, and how things go... I wish there was something I could do to lend a hand... Best wishes to you and all your family. I know you'll do all you can to help your sweet baby have the best life possible! ~Stuffyerface
Erin, in your OP you apologized for, "bringing everyone down with you" and I just need to point out that you are doing quite the opposite. You are raising the bar and setting a higher standard for all of us to strive for, I'm sorry your dealing with this. But you're doing it, and doing it well- you love your son, you're protecting him, you're seeking out support for yourself and family, you are doing great. I may not know you, but reading your words- at maybe the most stressful time in your life- says a lot about you, and I have confidence that you can do this. I imagine you not only fighting for your family, but advancing awareness for such a little known condition... but one day at a time. You have people behind you that you don't even know. When God brings you to my mind I'll say a prayer for all of you.~5or6
I will, of course, keep your family and little Kaleb in my thoughts and prayers and I can't imagine what you're going through. I do know one thing though: you can handle this (and it sounds like you already are handling this as best you can with so much strength and courage). Kaleb has the best parents he could possibly have, he's already so lucky. Keep your chin up and know we're all here for you. Even though your son's condition is SO rare and that there aren't many people who can understand exactly what you're going through, know that you have all of us. ♥ ~KelleyALee
Oh Erin,I am so heartbroken along with you. It has been such an emotional rollar coaster for you and your husband, and to be given a diagnosis that is so rare and to not know what to expect... I can imagine that it feels like your world has stopped spinning, but everyone else just moves along in spite of your pain.I will continue to read and walk along side you on your journey with Kaleb, as you discover more about who he is and who you are as his mommy. Things will never be the same again, and I am praying for you.I feel like we went through so much around the same time, and my heart aches for you. I can't give you any guarantees that he will be okay or what to expect, but I do give you my prayers and presence, please continue to keep us updated.--jenny
Erin, I know you probably don't feel like it, but you area STRONG woman! I am sure the road ahead will be far from easy, but I am also sure it will be very rewarding. That little boy is lucky to have a mommy like you, willing to go the distance!!!I just want to hug you!!! ~mrandmrsinlove
I Just need to let you know that the world would be much better place if it was filled with people like you. I deeply admire your decision to let him come and simply do what mothers do. care for your baby as well as you can. I personally have a huge faith in medicine and I know that at the pace we are going with genetics, it might be very soon that science can help him out . Think about what we have done in the past years in terms of technological evolution, Your son will be born in the best place he could, and it looks like he will have the best family possible. I am sure he will be a happy little boy and bring you many joys.~Paebaby
Also, my dear friend Kelly Hunter sent us these beautiful flowers today, I told Kaleb all about them and made sure he knew that she made them especially "boyish" just for him. We are so blessed. We love you Kelly!