My title is probably mostly misleading. Normally you have a drum role when you are awaiting something exciting, perhaps finding out the sex of your unborn baby or getting ready to find out who won in a really rewarding game. Well my drum roll is a little less enthusiastic, probably why I didn't use exclamation points [also probably why I'm letting Nolan pull down everything from my photo album shelf and throw my makeup all over the place]. I'm just blah today.
This morning I got a call from Dr. Weatherly. I had to pause for a few moments because he didn't identify which specialist he was, and honestly I can't remember all of them at this point. Once he started talking about K's sleep study I realized he was our Pulmonologist. He said that he got our sleep study results back today. One of the biggest things I've learned through this journey is that doctors do not call you unless there are concerns. He said that Kaleb's oxygen levels went pretty low at night and he does in fact have sleep apnea. He told me he wants us to go see an ENT to see if there is any tissue blockages and then if not Kaleb will need to go on Oxygen.
I know sleep apnea is not rare and very common, mostly among older men. My son is only 3 months old. I also realize that sleep apnea is very common among Trisomy babies, I sort of already expected this. But at the same time it's hard to hear something is "wrong" with your baby. Especially when there are a lot of "wrong" things with your baby. I know parents that cry when their baby have their first ear infection [I'm definitely not knocking those parents, trust me...I was a wreck through most of Nolan's ear infections, I'm pretty sure they affected me more than they affected him]. When an ear infection is the worst that your kid has had, it's pretty hard to get through. Just imagine if you continuously have new illnesses that come up on a monthly basis, and each one is just like the first ear infection was. Every new diagnosis is scary...we don't have information up front and we worry a lot. What new doctors will we see? Is there surgery involved? Will he need to be in the hospital? Is this going to cause him pain? Will he outgrow this diagnosis or will he live with it forever? How will this affect is life? How will this affect our lives? How much will insurance pay for? Those are the normal questions for us.
Anyways, we are going to Nolan's wonderful ENT, Dr. Kosko next week to see what's going on with K's little nose [the cutest little nose, with a very slight birth mark on it]. I actually look forward to that appointment...I look forward to any appointment that is supposedly going to give us answers and a treatment plan.
On another note, Nolan has been home the past two days with some [nasty] pink eye. Ew gross. He is finally going back to school tomorrow. We were given this scream that you have to line on the bottom of his eye where his lower eyelashes are. The doctor swore those are easier. I disagree. A lot. It's very goopy and Nolan hates them. The stuff gets stuck in his eyes and probably irritates them even more. It's very hard to get a straight line on a flailing toddler. It's almost like putting eye liner on while in a moving car, it just doesn't come out very well.
Showing posts with label pink eye. Show all posts
Showing posts with label pink eye. Show all posts
3.29.2011
Drum roll please, the results are in.
Labels:
birth mark,
ENT,
pink eye,
Pulmonologist,
sleep apnea,
sleep study
3.28.2011
Where we are now
I just wanted to post a quick update about my boys. They do such amazing things on a daily basis and I don't want to forget how they were at these ages.
Nolan
Nolan
- He will be 20 months old in 3 days.
- His vocabulary is finally growing! He says, thank you, juice, sock, baby, please, buh bye, love you, mama, dirt (he likes to pick the "dirt" from in between his toes after school) and other random small words. I am so proud, especially since he finally passed his hearing test and the cyst or scaring on his ear seems to be getting smaller and having less of an impact on his speech.
- He is more obsessed with cleaning now than ever. He has recently discovered the duster, he will sneak into the cabinets that have locks on them just to pull out the duster and will dust everything. He will spill milk just so he can pick it up with a wipe. After he eats he likes to clean up his highchair. When he sees trash in the house he picks it up and throws it in the trash can. He's amazing.
- He currently has pink eye in both eyes and has cream that we have to put on his bottom lash line.
- He loves his pillow pet and will lay down and cuddle wherever you put it.
- When he gets in trouble he runs up to you and wraps his arms around your legs to hug you, he's too smart. There is no way I can ever be mad at him when he does that. We are in for trouble...
- Nolan will eat anything as long as I watch him and gasp in disbelief every time he puts said food into his mouth and then clap after every bite. It's almost like a game. I'm into anything as long as it gets him to eat his veggies and fruits.
- Nolan loves to sleep. He often sleeps until noon, and normally goes to bed around 8pm. If he is accidentally woken up in the morning when we are getting ready he will cry for a couple of minutes and then go right back to sleep.
- He doesn't like TV. He has no favorite cartoon or character. We put on different toddler shows and he pays no attention, which is great. The only time he will pay attention is if there is singing and dancing involved, that boy loves to dance. I taught him how to booty dance one day and now when he dances he will sometimes stick his booty out and shake it around. Heeeee-larious!
- He sleeps through the night [SCORE]
- He has finally graduated from ONLY sleeping in his swing to sleeping in his crib. We start him at the top of his crib and by morning he is at the very bottom. Last night we had a toy keyboard at the end of his bed and he got so low he hit it with his legs and it fell on top of his legs, causing him to wake up. Poor thing.
- His milk protein allergy is finally under control.
- He has curly dark brown hair that he loves to pull on.
- His head strength is getting to be amazing, even his therapists have commented on how well he is doing.
- After he eats he is the happiest baby. He will sit for around 30 minutes and smile and laugh at just about anything. Unlike Nolan he is highly entertained already by the TV. He also loves to stare and coo at the fan, bright lights, Nolan's kisses, and mommy and daddy's faces.
- He hates poop. Who doesn't? [actually Nolan could live in a poopy diaper] Kaleb will however scream as soon as poop hits his diaper.
- He has only gained around 3 pounds since he was born and still fits into [most of] his newborn clothes.
- He turned 3 months old today! Happy birthday baby!
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